‘My wife was misdiagnosed over the phone… three months later, she was gone’
https://www.manchestereveningnews.co.uk/news/greater-manchester-news/my-wife-misdiagnosed-over-phone-30264213?utm_source=reddit&utm_medium=post&utm_campaign=reddit
Posted by SubstantialSnow7114
8 comments
An absolutely tragic story but just so sad that the trust aren’t willing to review the case and properly account for the failings.
It should have been automatic for a PM and coroners inquest given the age and lack of substantial diagnostic history.
Only recently had a similar experience where a suspected fracture that had been missed on Xray and allocated a phone call.
There are only so many NHS resources to go around, and at the moment, they are all being used. It’s not as simple as this person should have seen a doctor. It’s who shouldn’t be seen by a doctor anymore, so someone with their symptoms can.
In my experience with the NhS (and GPs), they often seem to fall back on “you’re too young for your symptoms to be anything serious”- so while it is true that it’s much less likely for somebody in their 20s/30s to have cancer, those rare cases that do are all too often caught too late, despite repeated doctors visits.
I have a large neck lump that’s been swollen for months, and it’s apparently not even worrying enough for an ultrasound, much less an MRI. I’m having to look at private scans just to make sure it isn’t something serious.
Christ, persistent blood in stool is not something that should be just a phone appointment
Chances that this poor woman was just told it’s to do with her menstrual cycle/period (which I saw in the article she was “diagnosed” with endometriosis but didn’t say if she’d received an actual laparoscopy to confirm said diagnosis) and/or to lose weight? This is a much bigger picture than just the NHS being severely underfunded. Women are constantly overlooked and under/misdiagnosed for SO many things that are just put down to weight and periods.
It’s not just a new diagnosis, either. My fiancee had breast cancer, and about a year after treatment, she started experiencing leg pain. Every doctor and nurse fobbed us off. No scan is necessary for that.
Well, it turned out to be a new cancerous tumour growing around her arteries and bone in her upper leg. By the time they gave us the scan, all they could do is look at us like puppies as they told us it was terminal.
She has been dead 2 years now. I have had to get a lot of help privately to help me back to my feet. But to this day, I get angry anytime I pass Great Western Hospital in Swindon.
Article says she didn’t receive a proepr diagnosis. So no one can speculate. Heartbreaking story, and maybe a lack of searching for the real cause of death.
But seems like a cheap shot at the NHS to me. Article clearly states they don’t know what cancer it is. Seems like it’s written by someone with half a story. Just my take. Sad nethertheless
A horrible situation all round. Really do feel for the husband and the kids!! What I would say and it sucks, but we as individuals need to advocate for our health, sometimes we need to follow our gut and say nah that’s not right. We need better education around conditions. Like that phone call diagnosing endo is so off, like don’t women go to specialists for that and doesn’t it usually take years for a diagnosis?
Personal example of advocating for yourself I spent a year going from GP to GP out here in Australia getting told I was just depressed, I wasn’t and eventually seen a GP after we actually moved 2 hours away that finally did a routine blood test. My bloods came back and I’d liver damage from long covid, low bone density and my testosterone levels were shot!! I either couldn’t get out of bed or couldn’t sleep, my mental health was suffering big time due to that.
I went on TRT and improved almost immediately, and all my blood work was better. I then was referred to an endocrinologist who just spoke about kids and fertility, even though I’d said I’m not interested in having kids and just has an old archaic view that steroids are bad and wanted to take me off them. I just said thanks, but no thanks and walked the fuck out of the room never to go back.
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